Tag Archives: Emotions

My time has started in UCL hospital, Queen Square, London

Well I’m here and it’s arrived I’m in hospital about my Dystonia. I arrived on Monday 6th January 2014 welcomed by all the nurses and other team members. I have got to be honest I was a lot worried but thinking back I should just live for the moment with my head held high. I’m not saying my emotions are in control far from it like my Dystonia I have good days and bad ones so this week is I feel so far is them getting to know me. But the really great thing is rather than just say yeah ok it’s alright they sit and listen and it’s the silly things that trigger the emotions. Not only are the staff nice but in my room which I share with 3 other ladies they are great too which I know sounds strange but is really nice too we all have our off time but we all smile and put on our brave faces together and laugh with each other. I think one thing I will always remember is the girls in my room. I shall try and keep you all updated better next week as so far this week all we are doing is just talking. So have a good week all and I shall try to type soon

Emotional times

The last couple of days have had me with lack of sleep, pain and Thursday I’m very tearful. I don’t understand why. I know pain can change me which I don’t do it on purpose.

Today I’ve spent at my mum’s as it is my mums birthday. I’ve struggled as really lack of sleep but I’ve put on a brave face by laughing and smiling but inside all I wanted to do is go asleep. Hopefully I will sleep better tonight so fingers crossed.
Have a good day everyone.

The twist and turns of my Dystonia

I’m still suffering with intense pain and struggling with my spasms. My spasms seem to be usually fairly under control (so they should be what with taking 30 pills a day) mostly all are for my Dystonia. So I’m still unsure why the change all of a sudden. I recently saw a picture on a friends Facebook site and it explained what the cycle is as below.

The Cycle Of Pain20130522-170046.jpg
My sister said why don’t I try meditating but I don’t know how to just switch off. She also said why not try a thing called Zentangle, it is supposed to relax you but I’m not sure if that will help. If anything it’s nice to be doing arty sort of stuff again after such a long time (since I was at school).
So here is my first try at doing a Zentangle it was interesting while it lasted.

My 1st Go At Zentangle 20130522-201213.jpg
I think I am willing to try anything to see if it works as not sure if I can cope with anymore pain.