Tag Archives: Lack of sleep

My sleep problem v Dystonia

For the last 4 + months I have been having a problem with sleeping. So I went to my GP and they sent me to Guys Hospital at London Bridge to study me for a night. Well my results are back and I’ve been told I suffer from sleep apnea. I then got told I have 2 options a gum shield which they don’t think will work or the ccap machine.
So today (15/10/13) I picked up an acap machine to record my breathing and hopefully I won’t snore so much and everyone will sleep better. So for 2 weeks I will be giving it a go. Then hopefully I will be able to deal my Dystonia better.

Things happening

Well on Tuesday 3rd September I had an appointment with my specialist and was pleased with how my foot looked good but then he be grabbed it to see how much movement I have which is not a lot but its better than what it has been. But his man handling of my foot managed to wake my Dystonia monster and the pain for the rest of the day was that bad all I wanted to do was shut down and try and sleep through the pain until it was bearable. But as I’m not sleeping very much I’m not coping with the pain. I am hiding it from everyone and putting on a brave face.

Then on Thursday I had to go to Guys Hospital to be monitored to try and find why I am having problems sleeping. After an hour I was ready to be monitored for the night

I’m wired up to see why I don’t sleep20130911-150615.jpg well the night as always was a long one with the wires and a hot room was a struggle but all I can hope is I didn’t embarrass myself. So I am awaiting those results now. I’m finding I’m not coping very well close to tears but hiding my feelings so I don’t make people worry. So I thought I would put my thoughts on here.
My life with Dystonia feels a lonely one.

With no hardly no sleep & hospitals what wins

Well I’m just left waiting for results for the last 2 weeks hospital appointments.
Went to my GP as the chemists are having problems getting my medicine gabapentin so i was talking away and mentioned that i had a numb finger. So I also had to fit in a blood test as well because for the last 2 months I have had this numb finger. I’ve taken all my rings off and still no joy still puzzled so GP said you need a blood test. I hope it comes back all ok. But they always say no news is good so at moment no news. My lack of sleep is really bugging me grumpy is the polite word for it. Trying to stay awake while at work for my 3 days that I do is a major struggle. But on a good thing we have our new mattress coming on 22/8/2013 a tempura one I’m hoping it arrives. My foot is hurting and keeps twitching not sure what that is about. So I shall type soon take care all