Sorry I didn’t write on Monday as I had a stressful day at work. Last year things got too much for me to cope and i had to go part time (3 days a week) as i felt like i was loosing my battle with Dystonia. Now I know that stress is a very big no, no for Dystonia Web Site UK Sufferers but after suffering nuisance phone calls 155 of them just broke the last straw.
I went home with a terrible headache and ached all over. So it was no surprise to me that my pain had reached almost to breaking point, I had just I don’t know how to deal with so much pain usually I try and rock back and forth (physically rock) to try and deal with what I’m going through, but I feel guilty when in bed my hubby is sleeping to rock as the whole bed moves and can make him feel sea sick. My hubby bless him puts up with a lot from my Dystonia and for that I’m glad I have such a great hubby and life friend all in one. Dystonia is a lonely place and just knowing I have loved ones family and friends makes a big difference. I know I don’t say it enough I love you all and thank you for being here with me in Dystonia Hell.
On Saturday I went for a walk down the road which would usually take 15 minuets to everyone else took me an hour but i done it. I booked a new tattoo for Dystonia Awareness Week but the earliest I could get it done is Friday 17th May (I know its going to be done outside the event but I couldn’t help it) but that hour walk has a penalty and I am paying for it. Since Saturday afternoon my left foot has done nothing but go tight and spasm (once when I told a doctor about my spasms he said all I had to do to get rid of it is smile that technique don’t work for me). The tattoo im getting is a blue ribbon with Dystonia Awareness.
I have enjoyed taking part in the Dystonia Awareness Week as all my colleagues and people I meet on the train have stopped and asked why the blue hair and nails. So I have told them all about my condition and the normal thing I get told is always ” I’ve never heard of Dystonia”. Which makes me sad because this condition needs to get recognised more and easier. My local GP had never heard of it so when I started seing her I gave her loads of pamphlets on Dystonia which she is quite thankful.
This is my sister Sam
On a good note for this week my little sister is up visiting the family as she lives in Devon. When she visits its always special as when we get together it brings good memories with young and carefree thoughts. But now a days we talk about silly memories and what is our recent tattoos. Gosh I love my Family I know i have them for support.