Tag Archives: Stairs

Tired and in pain

Today no matter what I try and do I can’t hide my pain. My foot must be in overdrive for pain. Mmmmm what have I done different I’m not sure. Still not sleeping that good but this week I’m at Kings College Hospital for tests on my heart. Yes I have a heart cos when I’m with my hubby and family it beats a happy little tune. But if I’m honest I’m a bit worried as when I last spoke to someone they said what is going to happen is they will make me run when I told them I can’t they then said ok we will get you to run up stairs when I said did you not listen I can’t because of my Dystonia they said don’t worry we will sort it. Mmmmm what will they sort.
But I’m not giving in on this pain stuff today grrrrr.

Holiday time

Sorry for the lack of writing I’ve been on my holiday. We went to Corfu.

Hubby and I in Corfu Greece
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Well It finally hit me that I’m not abled to do what I used to do and if I did I pay for it big time the following day. We had 4 excursions planned and I’m sorry to say we had to cancel 2 as I just can’t do stairs and a lot of walking which made me feel really sorry for my hubby as he was looking forward to them.
I have had to walk a lot on my ankle as my foot just twists all the way, luckily I was on crutches while on holiday so it did not bother me too much as I would just ignore it.
I got a lot of people looking and both hubby and I have got used to saying its Dystonia and then watching the blank face of the people then them saying I’ve never heard of it. So we have done our bit for getting Dystonia heard of a bit more in this big world.

Got a busy time soon with hospitals all different appointment for different things. Well I’m getting back to normality. So I’m not going to give in.